National Contacts

Blood fusion Australia
Mobile 0421 044 597
Email bloodfusionaustralia@gmail.com

Thalassaemia society of VIC
333 Waverley Road Mount Waverley VIC 3149
Telephone +613 9888 2211
Email info@tsv.org.au

Thalassaemia society of SA
PO Box 10079 Adelaide Business Centre Adelaide SA 5000
Telephone +618 8231 5503
Email info@tssa.org.au

Thalassaemia association of WA
PO Box 879 Morley WA 6943
Email stocko@westnet.com.au

Queensland
Isabella Agius
Mobile 0421 044 597
Email isabellaagius@optusnet.com.au

The Thalassaemia society of NSW
PO Box 80 Marrickville NSW 2204
Telephone +612 9550 4844
Email thalnsw@pacfic.net.au

Australian Thalassaemia Association
333 Waverley Road Mount Waverley VIC 3149
Telephone +613 9888 2211
Email info@tsv.org.au

Awareness Update

Statistics on the prevalence of Sickle Cell Anaemia, Thalassaemia, or other haemoglobiapathies in Australia is almost non-existant. There is literature that informs of the prevention of sickle cell anaemia, thalassaemia and other haemoglobinapathies around the world, but Australia is not even mentioned. Although the information provided gives prevalence data on the most common haemoglobinapthy mutations in different populations there are no numbers.

We require the co-operation from the Federal health department, hospitals, doctors and healthcare communtiy to assist us in collating this information. Australia is one of the most multi-cultural nations in the world and one of the largest immigrant nations. We must set up a National register of patients and carriers in highlighting the needs of patients and their families. The only successful cure is in prevention. Awareness is the KEY!