The third annual charity dinner to support thalassaemia research at the Murdoch Childrens Research Institute is on the 17th June 2006 at the 'St George Kapouti Club' Victoria. Please support this worthwhile cause into the thalassaemia research. The Cell and Gene Therapy Group, at the MCRI, is the only research group in Australia dedicated to thalassaemia and related haemoglobinopathies. Without the ongoing support of organisations and people like you this group runs the risk of ending their efforts in finding a cure.
For further information Please contact DR Jim Vadolas
10 June 2006
11th International Congress of Human Genetics
Thalassaemia Symposium Sponsored by Novartis
Sunday, 6 August 2006 - Brisbane Convention Centre, QLD (Room P1/P2)
This free symposium is a very worthwhile event to attend whether you are a patient or a healthcare professional. An overview of Thalassaemia will be presented by well respected speakers form all over the world. Topics such as management in different countries other than Australia, oral iron chelators and the latest research in finding a cure for thalassaemia will be presented. There will be an opportunity to ask questions as an expert panel of doctors and scientist has been scheduled after presentations.
Please Register your interest to Prescribed Events
Sunday, 6 August 2006 - Brisbane Convention Centre, QLD (Room P1/P2)
This free symposium is a very worthwhile event to attend whether you are a patient or a healthcare professional. An overview of Thalassaemia will be presented by well respected speakers form all over the world. Topics such as management in different countries other than Australia, oral iron chelators and the latest research in finding a cure for thalassaemia will be presented. There will be an opportunity to ask questions as an expert panel of doctors and scientist has been scheduled after presentations.
Please Register your interest to Prescribed Events
Thalassaemia Society of South Australia
NEWSLETTER JUNE 2006
Hi All,
It’s half way through the year and there are just a few quick things to let you know so let’s jump straight into it! But firstly well done to Stella and Giorgio for an outstanding article in the Sunday Mail on pg 5 no less – and a gorgeous photo J and lastly thanks for the survey responses and your support of SA’s involvement in Blood Fusion Australia.
Cheers
Irene (Ponias) Giakoumis
PresidentThalassaemia Society of SA Inc
GET TOGETHER DINNER
We’ve organised a MID YEAR get-together and we’d love to see you there. It’s a great opportunity to catch up and to also farewell one of our favourite nurses at the
Royal Adelaide – Cathy. Cathy is going to work overseas and we wish her all the best!
WHERE: Watermark ‘all you can eat’ restaurant, 631 Anzac Hwy (across from the Buffalo ship), Glenelg.
WHEN: Friday 16 June, 7pm
COST: Meals: Adults $25, there are also kids prices and children under 5 free. Drinks are on us.
We can also help out anyone who needs it, just let us know, that’s no problem.
RSVP: ASAP – sms Irene 0402 358 006
THALASSAEMIA SYMPOSIUM WEEKEND
As part of the International Genetics Conference in Brisbane this year, there will be a 1 day Thalassaemia Symposium on Sunday, 6 August. A fun weekend is planned. At this stage, Bill is confirmed to attend and we hope there will be more from SA to hear the latest on Thalassaemia and also to support the launch of Blood Fusion Australia.
Come along to find out more about new developments and support a group that is for ALL blood transfusion dependant people - not just Thals. We need your support, even if you are too busy! Bill has all the details of flights and accommodation. A package for 2 nights accomodation at Ibis Hotel in Brisbane INCLUDING return airfares to Brisbane from $308.00. *** BUT WE MUST BOOK NOW! Airfare Specials won't last long!***
We really hope you can make it for a fun and rewarding getaway weekend.
Contact Bill on 0419 858 046 to find out more.
The symposium highlights include:
An Overview of Thalassaemia in Asia Pacific,
Prof. Sir David Weatherall (UK)/ Thalassaemia overview / Management paradigm / pre-natal diagnosis,
Dr. Donald Bowden (Aust)/ Compliance to chelation: A key to life,
Sr Libby Reid (Aust) / Government program for Thalassaemia screening,
Dr. Lin Kai-Hsin (Taiwan) / Advances of iron level monitoring,
Dr Tim St Pierre (Aust) / QoL/ Health Economics perspective re: iron chelators Compliance /complication/Cost,
Dr. Thomas Delea (USA) / Management of iron overload - introduction of a
new agent (Exjade),
Dr. John Porter (UK) / Recent advances in BMT for Thalassaemia patients,
Dr. Mammen Chandy (India) / Genetic research into Thalassaemia /
Dr. Suthat Fuchareon (Thailand) /
Expert panel Q&A session.
The conference website is: http://www.ichg2006.com/
Hi All,
It’s half way through the year and there are just a few quick things to let you know so let’s jump straight into it! But firstly well done to Stella and Giorgio for an outstanding article in the Sunday Mail on pg 5 no less – and a gorgeous photo J and lastly thanks for the survey responses and your support of SA’s involvement in Blood Fusion Australia.
Cheers
Irene (Ponias) Giakoumis
PresidentThalassaemia Society of SA Inc
GET TOGETHER DINNER
We’ve organised a MID YEAR get-together and we’d love to see you there. It’s a great opportunity to catch up and to also farewell one of our favourite nurses at the
Royal Adelaide – Cathy. Cathy is going to work overseas and we wish her all the best!
WHERE: Watermark ‘all you can eat’ restaurant, 631 Anzac Hwy (across from the Buffalo ship), Glenelg.
WHEN: Friday 16 June, 7pm
COST: Meals: Adults $25, there are also kids prices and children under 5 free. Drinks are on us.
We can also help out anyone who needs it, just let us know, that’s no problem.
RSVP: ASAP – sms Irene 0402 358 006
THALASSAEMIA SYMPOSIUM WEEKEND
As part of the International Genetics Conference in Brisbane this year, there will be a 1 day Thalassaemia Symposium on Sunday, 6 August. A fun weekend is planned. At this stage, Bill is confirmed to attend and we hope there will be more from SA to hear the latest on Thalassaemia and also to support the launch of Blood Fusion Australia.
Come along to find out more about new developments and support a group that is for ALL blood transfusion dependant people - not just Thals. We need your support, even if you are too busy! Bill has all the details of flights and accommodation. A package for 2 nights accomodation at Ibis Hotel in Brisbane INCLUDING return airfares to Brisbane from $308.00. *** BUT WE MUST BOOK NOW! Airfare Specials won't last long!***
We really hope you can make it for a fun and rewarding getaway weekend.
Contact Bill on 0419 858 046 to find out more.
The symposium highlights include:
An Overview of Thalassaemia in Asia Pacific,
Prof. Sir David Weatherall (UK)/ Thalassaemia overview / Management paradigm / pre-natal diagnosis,
Dr. Donald Bowden (Aust)/ Compliance to chelation: A key to life,
Sr Libby Reid (Aust) / Government program for Thalassaemia screening,
Dr. Lin Kai-Hsin (Taiwan) / Advances of iron level monitoring,
Dr Tim St Pierre (Aust) / QoL/ Health Economics perspective re: iron chelators Compliance /complication/Cost,
Dr. Thomas Delea (USA) / Management of iron overload - introduction of a
new agent (Exjade),
Dr. John Porter (UK) / Recent advances in BMT for Thalassaemia patients,
Dr. Mammen Chandy (India) / Genetic research into Thalassaemia /
Dr. Suthat Fuchareon (Thailand) /
Expert panel Q&A session.
The conference website is: http://www.ichg2006.com/
05 June 2006
Australian Thalassaemia Association Workshops
On Saturday 17th June 2006 the ATA Executive will be hosting a workshop of ATA Delegates at the TSV office 333 Waverley Road, mount Waverley in Victoria.
After the workshop, delegates will be invited to attend the 3rd Annual Dinner Dance of the St George Kapouti Club fundraiser for research into Thalassaemia, with proceeds going towards the work Jim Vadolas and his team are undertaking at the Murdoch Childrens’ Research Institute.
For Further information or if you would like to attend please contact ATA via
Ph: (613) 9888 2211
Fax: (613) 9888 2150
Email: info@tsv.org.au
After the workshop, delegates will be invited to attend the 3rd Annual Dinner Dance of the St George Kapouti Club fundraiser for research into Thalassaemia, with proceeds going towards the work Jim Vadolas and his team are undertaking at the Murdoch Childrens’ Research Institute.
For Further information or if you would like to attend please contact ATA via
Ph: (613) 9888 2211
Fax: (613) 9888 2150
Email: info@tsv.org.au
Subscribe to:
Posts (Atom)
