fusing around

Australia

Introducing fusion founders:

Flash fusion - Isabella Agius - QLD

Sparkles fusion - Giovanna Inserra - Vic

Bubbles fusion - Josie Stockden -WA

Captain Fusion - Bill Christos - SA

Electric fusion - Irene Giakoum- SA

We are also looking for more committee members around Australia, Who are ready to make a commitment. If you want to be involved in making a difference & be a part of a pro-active fun organisation.

Email us now!
blood fusion australia

Blood Fusion Australia

All Aboard !!!

We aim to target -

patients with genetic blood disorders, families, friends, scientists, healthcare
professionals, community educators, emergency services, Australian Red Cross Blood services, Pharmaceutical companies, Rotary Clubs, Women health groups, Multi cultural groups, local, state and federal MP’s, students &

most importantly YOU!

BLAST OFF!!

Blood Fusion Australia

fusion launch

To boldy go where no other organisation has gone before.
Search for new frontiers.
Source new centres of influence and raise awareness across Australia.

Awareness Awareness Awareness Awareness Awareness

Blood Fusion Australia

fusion mission

We aim to raise awareness across Australia for blood transfusion dependant people in a fun, creative & effective environment.

We will educate, promote & develop strong partnerships with like minded organisations.

We will raise money to fund research, develop awareness campaigns.

We will provide support, advice & information that will always be fun for patients, families & friends.

Blood fusion

Australia

fun but serious

Blood Fusion Australia - On The Move

On behalf of our Fusion founders of 'Blood Fusion Australia' (BFA), we welcome and thankyou for your interest into our new founded organisation. We welcome your interest and appreciate your much-needed support and of course you're exceptional expertise. So get your seat belt on and enjoy the ride you are about to embark.

Since the February 2006 Workshops, the steering committee has proceeded in developing an organisation that we strongly believe in: Blood Fusion Australia (BFA). We have identified a need to have a national organisation that broadly advocates for the interests of those with genetic blood conditions, raises awareness and provides community education.

Our draft mission statement is:

To form strong partnerships to raise awareness and inspire research, support, and learning for the key people involved with genetic blood conditions and those who are transfusion dependent including patients, families, friends and health professionals in a fun environment.

Our scope includes:

Genetic blood conditions: aplastic anaemia, thalassaemia, sickle cell disease, diamond black fan anemia, falconi’s anaemia,

Transfusion dependent conditions: mydeodysplastic Syndromes, leukaemias
Hereditary iron overload: haemachromatosis

BFA does not seek to replace individual associations dedicated to individual conditions but wish to work with them to collectively strengthen the profile of transfusion dependent conditions. We aim to work in unity and partnership with entities that share our goals and vision.

Our motto here at BFA is "FUN but SERIOUS". We have created a working environment that is engaging, fun and simplified. Although, our priority is to have fun we realise there is a serious side to the work we do now and the future.

Our vision is to represent the transfusion dependent and iron overload community, who although diverse, have shared issues. We do not believe that such an organisation exists and truly believe that the commitment we make to this organisation will make a difference.

Given the alliance of BFA to genetic conditions, we notify the community that Blood Fusion Australia will have a presence at the 11TH INTERNATIONAL CONGRESS OF HUMAN GENETICS, from August 6-10, 2006 at the Brisbane Convention and Exhibition Centre.

We invite interested individuals and organisations to find out more about us at our first public foray. We welcome any questions you may have and look forward to your response.

We wish you and your members all the best for International Thalassaemia Day.

Yours in Fusion,

Isabella Agius
Bill Christo
Irene Giakoumis
Giovanna Inserra
Josie Stockden

What is Thalassaemia?

Thalassaemia is a genetic blood disorder inherited from both parents. The amount of haemoglobin produced by the body is reduced.

Regular blood transfusions and iron chelation is required for the survival of patients with thalassaemia. Although, bone marrow transplant via the use of sibling donors has been successful with some thalassaemia patients, there is no other known cure.

International Thalassaemia Day May 8th 2006

Today is dedicated to all those with Thalassaemia all over the world.
How they inspire us all, no matter how difficult the struggle.
All who live with this, teach us lessons each day
Live life to the fullest, have fun, be happy
And not let any day pass with regret.
Sharing experiences, helps tremendously and does not make us feel alone.
Smile, have strength and survive,
All who live with this know each day is important and not to be wasted,
Each and everyone of us can learn from people with thalassaemia
Maybe one day there will be a cure,
I for one look forward to that day.
A day in a perfect world wouldnt that be nice

Daydreamer is what i am.
A person without dreams is like a dog without a bone.
Yes today is International Thalassaemia Day, lets celebrate life and never forget those that have gone before us, that remain in our hearts forever more.

By Isabella Agius May 8th 2006