On behalf of our Fusion founders of 'Blood Fusion Australia' (BFA), we welcome and thankyou for your interest into our new founded organisation. We welcome your interest and appreciate your much-needed support and of course you're exceptional expertise. So get your seat belt on and enjoy the ride you are about to embark.
Since the February 2006 Workshops, the steering committee has proceeded in developing an organisation that we strongly believe in: Blood Fusion Australia (BFA). We have identified a need to have a national organisation that broadly advocates for the interests of those with genetic blood conditions, raises awareness and provides community education.
Our draft mission statement is:
To form strong partnerships to raise awareness and inspire research, support, and learning for the key people involved with genetic blood conditions and those who are transfusion dependent including patients, families, friends and health professionals in a fun environment.
Our scope includes:
Genetic blood conditions: aplastic anaemia, thalassaemia, sickle cell disease, diamond black fan anemia, falconi’s anaemia,
Transfusion dependent conditions: mydeodysplastic Syndromes, leukaemias
Hereditary iron overload: haemachromatosis
BFA does not seek to replace individual associations dedicated to individual conditions but wish to work with them to collectively strengthen the profile of transfusion dependent conditions. We aim to work in unity and partnership with entities that share our goals and vision.
Our motto here at BFA is "FUN but SERIOUS". We have created a working environment that is engaging, fun and simplified. Although, our priority is to have fun we realise there is a serious side to the work we do now and the future.
Our vision is to represent the transfusion dependent and iron overload community, who although diverse, have shared issues. We do not believe that such an organisation exists and truly believe that the commitment we make to this organisation will make a difference.
Given the alliance of BFA to genetic conditions, we notify the community that Blood Fusion Australia will have a presence at the 11TH INTERNATIONAL CONGRESS OF HUMAN GENETICS, from August 6-10, 2006 at the Brisbane Convention and Exhibition Centre.
We invite interested individuals and organisations to find out more about us at our first public foray. We welcome any questions you may have and look forward to your response.
We wish you and your members all the best for International Thalassaemia Day.
Yours in Fusion,
Isabella Agius
Bill Christo
Irene Giakoumis
Giovanna Inserra
Josie Stockden
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