Statistics on the prevalence of Sickle Cell Anaemia, Thalassaemia, or other haemoglobiapathies in Australia is almost non-existant. There is literature that informs of the prevention of sickle cell anaemia, thalassaemia and other haemoglobinapathies around the world, but Australia is not even mentioned. Although the information provided gives prevalence data on the most common haemoglobinapthy mutations in different populations there are no numbers.
We require the co-operation from the Federal health department, hospitals, doctors and healthcare communtiy to assist us in collating this information. Australia is one of the most multi-cultural nations in the world and one of the largest immigrant nations. We must set up a National register of patients and carriers in highlighting the needs of patients and their families. The only successful cure is in prevention. Awareness is the KEY!
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