08 October 2005

State Update - SA

Thalassaemia Society of South Australia

The Thalassaemia Society of SA is a non-profit organisation that aims to:

* Raise public awareness for the genetic blood condition Thalassaemia in South Australia;

* Ensure that people with Thalassaemia in SA receive the optimum standard of treatment;

* Provide advocacy on behalf of patients;

* Support and encourage medical and social research projects designed to improve the quality of life for people with haemoglobin conditions; and

* Obtain and distribute the latest scientific and medical information on Thalassaemia

The society relies on fund raising and donations to carry out its work. In 2004, the Society will be holding a dinner dance on Saturday, May 8th 2004 as its major fund raising event.

May the 8th was declared International Thalassaemia Day by the World Health Organisation in 1983, therefore this year marks the 11th anniversary of this day.

We look forward to strong community support for this event. For further information, please contact Irene Ponias on 0402 358 006.

Irene Ponias TSSA - President

No comments: